An un-eventful day! YEAH! We had a "normal" day today - a clinic visit to get my IV antibiotics and that's it. My arm is still very swollen. My right arm is about 7 cm larger in circumference than my left arm. However, the pain is drastically better. Dr. Rizzieri came to see us in the clinic today and the drug company (Synta Pharmaceuticals) has decided they want to give me almost the same dose (just a little bit lower) twice a week. The drug is called STA-9090. They have just finished a round of doing this on solid tumors and I will be the very first on this protocol for a liquid tumor. The FDA actually has to approve it for me first. So the plan is to have one more cycle (3 more treatments) of once per week then we will go to twice a week as long as we get FDA approval which should not be a problem.
Other exciting news - Joleen (Michael's aunt) got a letter today that she may be a possible bone marrow match for someone. They told her that she is one of "less than a handful" of possible matches and it is someone that is outside of the US. So I'm ecstatic that she may be a donor. The chances of her actually being a match are still low but it's still exciting. She registered for Be The Match at a bone marrow drive several years ago. One of the doctors (not a transplant doctor just an oncologist) told me that having a bone marrow drive was basically pointless because the chances of adding a new HLA type are so slim. (I couldn't believe he said this!) SO this shows that you never know when you will possibly add someone that would be a match. If everyone had his attitude there wouldn't be a bone marrow registry.
Pray for more days like today! (Not to mention the weather!)