Hello everyone! A lot has been going on in the last few days. Friday, I started getting a few mouth sores and by Saturday morning they were in full force. My cheeks are now swollen and it is pretty hard to talk or eat. The doctors upped my Valtrex (antiviral med). They also took cultures to see exactly what is going on in there and how to properly treat it. They said it actually looked more like a fungal infection. These sores aren't near as bad as the sores I had after the transplant and I am also able to control most of the pain with medication. It is a little frustrating to find things to eat though. Right now my diet consists of mashed potatoes, sweet potatoes, gravy on bread, and ice cream.
Second Issue: My toe. I have another infection in the skin around the toenail. Last night by whole left big toe was basically all red, but thankfully it looked better this morning. They put me on an additional antibiotic to deal with this.
Third Issue: my PICC line entrance site is not looking good so they put me on IV anti-something today in hopes of taking care of that. I told mom I felt like I was falling apart with all of these little issues happening all at once. This also means I will probably be going to clinic more often to get the IV drug. I also have to come in tomorrow for a bone marrow biopsy. I'm hoping for good results but very nervous and uneasy about it at the same time.
The Good News: I got treatment #8 today and other than the nuisances I have already complained about, I'm actually feeling really good.
It's been exactly one year since my first appointment at Duke. I've learned a lot this year. I've gained much respect for those who work in the healthcare field, especially nurses. The nurses at Duke have been absolutely amazing. They let me know about what to expect during each step of the process and they also advocated for me when they thought I was in pain or needed some other type of medication. They are sort of the "front line" against the disease. I've also learned what a huge support system I have and how much my friends and family care about me. It is a shame that it takes something like cancer to make me realize this completely but now that I have it is amazing. I could ramble on for pages about the things I've learned but I will save that for another time.
Love and Thanks to All, Amy