So I haven't updated in while because things have been changing kind of rapidly and not so much for the good. WARNING: This post was hard to type and may be hard to read. First, let me say that we have run out of "curing" type options. The treatments I am receiving now are simply to try to control my Leukemia as much as possible and give me more time while also weighing quality of life vs. quantity of life. Michael and I have truly found peace with this and are actually handling it very well. We've kind of been eased into this. We knew it was a big possibility when my Leukemia came back in November and especially when the chemotherapy I received in December did not work.
We found out that I am not eligible for the clinical trial that is starting in May so that was our first change in plans. I started taking Hydrea on Tuesday but unfortunately my white count still took a fairly big jump. We were hoping that the Hydrea would at least work for a couple of weeks but it doesn't look like it is controlling my leukemia well enough. So, we go to the next plan. Today I am starting a round of mild chemotherapy (Mylotarg and Vidaza). They really think I will not have many side effects from this and will tolerate it well. These drugs will be given to me outpatient but this means I have to come to clinic everyday. In addition to this chemo they are tripling my dose of Hydrea hoping that it will at least help a little.
I also had a low grade fever last night and this morning so they put me on IV antibiotics. One positive thing is that I don't have to deal with the side effects of oral antibiotics. This seems so little but let's focus on the positive! Again, another positive is that this is outpatient treatment so I get to sleep in my own bed! My back has also been hurting which they say is probably an effect of the high white count so I really appreciate pain medications right now!
Hope all of this makes sense, it's a lot to take in. In spite of the fact that my Leukemia is being stubborn and hard to control, I actually feel good which I am so thankful for.
Hope the weekend treats you well, and Happy Mother's Day to all the moms out there,