Wednesday, January 13, 2010

Hello - I know I should have updated sooner but my energy level has really dropped from low to very low this week. My hemoglobin and hematocrit were pretty low on Tuesday so I will probably get some red blood cells when I go back on Thursday which should help.

I did get the trial drug yesterday, it's called STA-9090. I didn't have any reactions to the drug while getting it and haven't had any side effects so far. Yesterday was very stressful though because my appointment was at 9:00 and the drug did not get there until 12:30. In addition, they had to do EKGs and blood work before, during, and after the hour I was getting the drug. I was very tired and I felt like every time I was almost asleep someone came in wanting to do something else to me.

Yesterday was also mom's birthday so we joked that hopefully what happens on her birthday works better than what happened on my birthday (transplant). Michael also started school this week. This semester he has to teach two general chemistry labs and take a class on top of his research responsibilities so he's going to be busy. However, he has always been a "workaholic" and enjoys being an official Tarheel even though it brings more responsibility.

As always I hope you all are well and having a good week,


  1. Amy & Michael,
    May God give both of you strength--for your body, Amy, and for your classwork, Michael!

  2. Glad there are no reactions. Praying that continues as we ask for this drug to be the one God uses to bring your healing. Happy Birthday (a day late) to Mom. You know that moms stop counting after a while and just continue to be amazed at how old you "children" have become. :) Tell your Tarheel husband to enjoy that busy schedule and know that he is prayed for too. I got to see Grandma Phyllis and get a hug at our joint church service and meal tonight. Great food and fellowship. Please continue to keep us posted. You're always in out thoughts and our prayers.

  3. I know you will be glad to get some red blood cells tomorrow to help build your energy back. You've had new things going this week, but next week will be better, especially if you don't have such a long wait for the drug. HAPPY LATE BIRTHDAY to Kathy and hugs to all of you.
    Love you much! Grandma

  4. Amy,

    Our prayer for you is that the infusion of red blood cells will reve up your engine as the clinical trial works to perfection.

    Yours in Christ,
    David & Candy

  5. Happy Belated Birthday, Kathy. 29 again I suspect. How did you catch up with me? Amy, I am very glad there have been no reactions and pray that the only reaction you have are against those unwanted cells. We'll also pray not only for YOUR energy but for Michael's. Whew! What a class (teaching, researching and learning) load!
    Thank you for keeping us informed.. Our love, hugs and prayers are always there with you.
    Love you all,

  6. Hey Amy, hope your energy level increases least there is a reason for yours being low...I have no excuse!!! sounds like Michael is going to be really busy, but the good side of this, the "Crizers" are official Tarheels he can come home after a days work...and Happy Birthday Kathy!...Amy,THANK YOU for wishing all of us well and to have a good week...U R so thoughtful! as before remember that u r kept in our prayers...take good care, luv ya, Wanda & Jerry...:)

  7. Sorry Amy, I was testing...I have been trying to set the correct time on posting...I do have eastern standard time selected...& 4 whatever reason I am always behind the 4 hrs...can't seem to get it since I have made a total idiot out of myself if any of your followers can help me with this I would appreciate....I truly did not mean to pop in this way but I did!!!! LOL LOL...take care, Wanda

  8. hello everyone. was good to talk to you earlier, and hear the actual hokie bird singing "felize navidad"- i wasnt sure there was such a thing!! good one, david. hope you have a nice weekend, rest up and be ready for round 2 next week!! you are doing so good, thanks for the updates, we look forward to them whenever you are up to posting them. love you, genie and eddie