Side effects seem to be leveling off over the last few days. Amy's mucositis isn't better but thankfully has not gotten any worse today. She still is unable to eat or talk. Her cheeks and neck are very swollen, which is not painful but uncomfortable. What hair Amy had grown back was falling out, so one of the nurses shaved her head today.
The nurses commented that they are impressed that she is still getting on the treadmill and walking a mile to a mile and a half each day. She has divided the time on the treadmill into 2 or 3 shorter times a day instead of doing it all at once .
A few comments about the Adult Bone Marrow Unit at Duke Hospital. It is located on the 9th floor and there are three doors you must pass through to enter the unit. You have to make sure the door behind you has closed before opening the next door. Once in the Unit, you have to go to a hand washing station and wash hands , then you can go through the 4th door onto the floor where the patient rooms are located. There are 15 rooms. Since being here 8-12 rooms have been in use. The whole unit has a special air filtration system. Duke does several types of transplants here which include bone marrow, peripheral blood stem cells, chord blood or a half match from a parent or child. Amy received peripheral blood stem cells. She is the only one on the hall who had a perfect match unknown donor (MUD). We now realize that finding a perfect match from an unknown donor is hard to do.
There have been many answers to prayer and blessing .... we feel very fortunate to have so many people in our corner supporting us. Thank you. Kathy