So we had a long clinic visit today and it is going to be a busy week. Today I received STA-9090 (the trial drug), platelets, red blood cells, and a dose of IV daptomycin (an antibiotic). They decided to start the daptomycin because the site where my hickman central line was is getting red. The hickman was taken out back in September but still hasn't healed. The "cuff" that held the line in place internally only partially came out when the hickman was pulled out so this is probably the reason for the slow healing. I am scheduled to have the rest of the cuff taken out on Friday. We will also have to go to clinic everyday to get the IV antibiotic because my student insurance does not cover home infusions. In addition to all of that I have a bone marrow biopsy on Thursday. So we have lots of medical stuff to do this week.
Today's treatment was the last treatment of the "first cycle" of the clinical trial, however the doctors have decided not to take a break between cycles since I've handled the drug very well with very few side effects. So "cycle two" will start next week. I'm glad there won't be any time in between. I want to keep beating the Leukemia down instead of giving it a break.
I also forgot to report that I had my first "hair cut" last week :). Mom just trimmed it in the back around my neck to keep it from becoming anything close to a mullet. My hair did not fall out with the round of chemo that I had in December so it has been growing steadily since about August. Mom says it looks like an actress from the old show Northern Exposure (I'm too young for that) or a news contributor on MSNBC (never watched that channel) - so I have no idea who to compare it to.
Much Thanks! Amy
P.S. - I finally figured out how to make it easier to comment on the blog, first go to the "comments" page then:
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