Wednesday, July 28, 2010

Hi Everyone - again I have been inattentive in posting an update and I apologize. Over the last week I've had good days and not so good days - mouth sores and a cough have been the downside. However, these seem to be clearing up. For a while I was eating fruity pebbles, the broth from soup, and of course banana popsicles because of the pain but I have gotten to experience a little bit of real food the last two days - it's been wonderful!

I even got "out" a few times this week - once to a get together at Michael's professor's house and then last night we went to see the movie Inception - way over my head!!! That's all I have to say about that. Going out is kind of bittersweet. It is enjoyable but makes me miss my "normal" life.

Okay, medically we met with Dr. Rizzieri today and his PA Therese and they have decided to start me on a low dose of cytarabine (a chemo) on Friday. I will get this low dose every Monday, Wednesday, and Friday (outpatient). They are also applying for me to get another drug to take in addition to the cytarabine. I had become a little frustrated with them because I think their goal was prolonging my life when I still want to save my life. I let them know today that I will go through whatever, take chances, etc. because my goal is still remission. Also on a positive note, my white blood cell count continues to be controlled by the Hydrea.

I have a long road ahead and can't thank you enough for your support, especially in prayer,
Amy


10 comments:

  1. Amy,
    You are so brave and such an inspiration. You are always in my thoughts and prayers. I am so happy that you are feeling better and that there is something new to try. Keep your head up and know that everyone here loves and prays for you.

    Debbie

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  2. Good for you in keeping the fight. I believe in miracle and I still pray for one to come your way. With your attitude you are going to prove to the doctors that this is possible.
    We love you and pray for you several times a day.
    Loved in Clifton Forge

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  3. What an encouraging update! You get the Distinguished Medal of Honor for your bravery! I am so proud of you and I agree, you still have some life to live. God has plans for you, dear one, and you just keep fighting to find out what they are. I love your endurance.
    Love you bunches.

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  4. Amy,
    You are a great trooper -- and more power to you from God above!
    You go, Girl!
    Lisa

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  5. What a tough and amazing young lady you are! I am so proud of you and your will to continue to fight - you are a true inspiration! I love you and continue to pray that a miracle for you is right around the corner! Give mom & dad hugs & kisses for me! LOVE YOU!

    Blair

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  6. WOW, AMY! Keep the FAITH going! Your battle is not yet over and your attitude is a STRONG one; backed by the POWER of PRAYER that continutes for you and your family.
    Jean Ann Anderson

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  7. Amy, my dear, you have made many tough journies on long roads, but what a determined traveler you are! I am constantly in awe of your fortitude. I am inspired by your faith and blessed by your positive appreciation for life. Know that hundreds of us are behind you and beside you cheering you on in this newest part of your trip. I love you and I'm praying for you, always!

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  8. As the saying goes: "It ain't over 'til the fat lady sings".....and darlin', you "ain't no" fat lady, so I do believe you just might be with us forever!!! Good for you to keep pushing despite knowing the discomfort you might be facing...You are nothing short of amazing! Love you!

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  9. Amazing is right!! and THIS fat lady has NO intentions of singing anything :) except maybe your praises ....
    Love you, Pretty Lady,
    Sherry

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  10. Donna Simpson NicelyJuly 31, 2010 at 9:09 PM

    Gosh, Amy, I claim little miracles like a movie date night wiht Michael; a night out with friends; eating real food..........when we acknowledge the "little things" God sometimes acts in a BIG way!!! blessings, donna

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