Sunday was a long day. Sitting at the hospital waiting to get released seemed to take forever. So when we finally got out of the hospital around 2:30 it was so nice to get back home.
Amy loves having a bed downstairs so she does not "have" to go up the steps if she does not want to. The nurses, supervisors and even the delivery guys from Duke Hospice have all been extremely nice and caring. Amy is now hooked to a small pump (it is in a "fanny pack ") that delivers a constant dose of pain medication to her every hour, plus she can push a button and it delivers a "extra" dose if needed. This is really helping and she can give herself more if she is getting ready to eat, which helps with the mouth/throat pain.
Yesterday we were lazy. We watched TV and played games on the computer. We have become hooked on a website called Sporcle - it has hundreds of trivia quizzes in categories from literature, TV, movies, sports, etc... be warned if you try it, it can be addicting :) We had a good day and Amy is feeling pretty good. We have been going back and watching some of Amy's favorite movies as a child... "Return to Oz" (with a talking chicken, flying moose couch, some guy with a pumpkin head..I find rather disturbing :), Babes in Toyland, Seven Brides for Seven Brothers, ... and Christmas movies are on the agenda. I told Amy I might go buy canvases and we might even try our hand at painting (Michael is opting out of this one ).
We cannot say it enough..thank you. We are still amazed at the care, love and support being shown to Amy. It means more than we can express in words.
love to all