Tuesday, June 15, 2010

Good Evening! We still do not have any results from the biopsies on my legs - nothing has "grown" from them which is good. I am walking again by myself though - I lost about 10 lbs. in 2 days so I suspect fluid had just built up on my legs and I couldn't walk because of it. It is very nice to be mobile again. Everyone was so excited when I actually walked into the clinic today. A lung x-ray last week also showed a pocket of something which caused it to hurt when I took a deep breath. For this I went on steroids and it seems to have cleared up.

They have also cut my clinic visits down to every other day instead of everyday which is a huge relief. My platelets get down to 1 or 2 but they have to balance my mental health with my physical health and this schedule is doing that. I am still taking the oral chemo pill but my white count it creeping up a little but hopefully we can right this off to being on steroids. This weekend we had lots of visitors that wore me out but were so worth it! You have no idea how much you help my mental state.

The biggest news I guess is that all my hair has fallen out again. It's been growing for about a year so this is a little disappointing but a lot cooler and easier to take care of.

As always we can't thank you enough for your prayers and support.


PS - I also ask for prayers for Julie Kiefer's family. She had a transplant about the same time as I did but passed away this morning.


  1. Hey, As usual you sound so good, you are a blessing to anyone reading your blog. And, just remember "Bald is Beautiful". As hot as you get, it will be a lot cooler and easier on you.
    I'm so glad for last weekend's visitors, what a blessing for people to come so far to see you, but you are worth it! See you soon, I love you!

  2. Hi Amy,
    It is so uplifting reading your blog tonight. You have such a wonderful, sweet spirit and such a positive outlook - it is contageous. Continue to be just as you are! I love you. I will pray for Julie's family as I lie down to sleep tonight. Love you, Aunt Robbie

  3. hey honey. i will say it again - you are amazing!!! seeing the advantage to losing your hair. you are a magnificent little warrior and we are all humbled by your fortitude. i am glad the clinic visits have eased back AND that you walked in under your own steam. just know we love you and pray hard for all of you. jane newkirk

  4. Good to hear from you. Praise the Lord that the painful leg swelling is down! We do pray for you every day. You are such an inspiration to so many of us who love you and care about you and your family. YOU are a miracle and we're asking for one of healing in your life. Have a wonderful day today! "In your name I will hope, for your name is good." Psalm 52:9 NIV

  5. God bless you Amy. We pray for you daily and so do the thousands that are part of our e-devotional team.

    May you have a wonderful day.

    Trusting Jesus,

    David & Candy

  6. I agree with others, so good of you to see the bright side of hair loss, it is much cooler i am sure! it is very hot and humid, so i bet it
    does feel better . glad the legs have improved and you are more mobile. enjoy your time at home. we love you, genie and eddie

  7. Now just what am I supposed to say? Everyone has covered it all. Oh I know, another positive :) With no hair, everyone can see ALL of that precious beautiful face of yours. Our hugs, love and prayers are always there with you, Pretty Lady...

  8. Christ's peace and love to you, your parents, and Michael!
    You are continually in my thoughts and prayers!
    God love you!

  9. Amy,
    I am sure you are SOOOOOO thankful to be more mobile!!! And about the hair....Bald is better than this mullet that Miss Alli is sporting :) We love you and continue daily prayers for you. Lots of Love....Keith,Kate, Maddi, Carson and Alli.

  10. Donna Simpson NicelyJune 17, 2010 at 5:06 PM

    Amy, do you even realize the joy you bring to others? Just by being yourself...living out each day on its own merits...whatever your state of being.... you continue to amaze me...inspire me...uplift me.....which is what we should be doing for you!!!